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    <channel>
        <title>The NFTP Patient Chat Room</title>
        <description>We welcome you and hope you find this a valuable resource.  Please direct any chat room question or concerns to our Senior National Coordinator mark.barletta@paincare.org.</description>
        <link>http://www.paincare.org/phorum5/index.php</link>
        <lastBuildDate>Thu, 09 Sep 2010 09:20:11 -0600</lastBuildDate>
        <generator>Phorum 5.2.13</generator>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23037#msg-23037</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23037#msg-23037</link>
            <description><![CDATA[ Mike, <br />
<br />
You mean to tell me Mr. Pain lives with you all to, I bet you he gets free rent and meals. His son lives with me. <br />
Mr Pain JR. <br />
I bet you he has a daughter and a wife living in other peoples homes that suffer from chronic pain. <br />
He keeps away all the people i cant stand and don't want to talk to in the first place. <br />
Its a love, hate situation living with Mr. Pain. mostly hate<br />
<br />
Mark]]></description>
            <dc:creator>mark.barletta@paincare.org</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Thu, 09 Sep 2010 09:19:56 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23034#msg-23034</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23034#msg-23034</link>
            <description><![CDATA[ <span style="font-size:large">Its been about 15 years now since I cut the legnth of the back of my hair. Cut it all off a few years before that trying to fit in to the world out there. That didnt work so I figured Im better off being who and what I am. If they dont have the time to figure out who I am inside then thats less drama and bull that I have to put up with. My wife and myself stay to ourselves mostly now that Mr Pain came to live with us. We have learned so well how &quot;friends&quot; disapear when he moves in with you. I guess that in some ways thats a good thing. I dont need the world to see me cry and moan on those days. It could always be worse than it is.<br />
   Praying for you all................. Mike .................</span>]]></description>
            <dc:creator>wovocca</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Thu, 09 Sep 2010 06:22:14 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23033#msg-23033</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23033#msg-23033</link>
            <description><![CDATA[ Mike,<br />
<br />
I just cut my hair and it was long, I grew it long at 25 years old and again at 50.<br />
People look at you different with long hair, like that damn hippie on drugs.<br />
Just that look on their face ,they don't have to say anything. I grew my hair all that way down to the middle of my back.<br />
I knew i would never grow it long again, so for 4 years i let it grow.<br />
<br />
Now people look at me different now that i cut my hair, I donated it to locks of love.<br />
So some kid is going to get my light brown hair. i would like to see who got my hair.<br />
And the look on their face.<br />
Anyhow everyone treats me different now that i cleaned up my hair, i kind of wish i did not cut it now.<br />
But it was time, hope all of you have a nice day with less pain.<br />
<br />
Mark]]></description>
            <dc:creator>mark.barletta@paincare.org</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Wed, 08 Sep 2010 19:16:47 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23032#msg-23032</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23032#msg-23032</link>
            <description><![CDATA[ <span style="font-size:large">Amen.  Ive been told the same  thing for years. Even before I was ever on pain pills. With a full beard and my hair in a pony tail Im looked upon as a druggie no matter what I do or dont do. Folowing my grand fathers Choctaw beliefs doesnt seem to make any differance. Look at the long haired dope addict.  But I figure what goes around comes back around. Some day they will learn. I just hate to see the lessons as they are being learned by those folk. For long years I couldnt figure out why some people are obsesed with the so called pain they claimed to have.  Now I know. So if I can learn so can they. Guess you have to experence it before you can understand it. No matter what it is. Mark,  I know it sure felt good to tell him off a bit though.  <br />
    We did get us a real ramp for my wife to drive her powered wheel chair up into the back of the van. No more toting that huge wooden ramp around with us. Now we can actually go some wheres when the pain days says its ok to do so.  Hope everyones pain is just a bit better today.<br />
///////////////////////////////////// Mike //////////////////////////////</span>]]></description>
            <dc:creator>wovocca</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Wed, 08 Sep 2010 17:36:19 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23023,23031#msg-23031</guid>
            <title>Re: LOOKING FOR INFORMATION ON SCARED TISSUE AND THE EFFECTS?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23023,23031#msg-23031</link>
            <description><![CDATA[ That's just another added feature to us chronic people and disabled.  No Insurance!<br />
<br />
As far as the scared tissue, Your right.  The Dr. said he would never be able to stop the pain medication and scared tissue would be even worse if they went back in.  There is no cure for this and only grows and pulls the nerves in more.<br />
<br />
There is no way Joe can take anymore than he takes.  He can't function or stay awake and his 35 day hospital stay proved that.  They had a hard time controlling his pain with what he was already taking.  They had to monitor his breathing and this being his problem with a lung infection didn't help matters.  I want him to try changing but he want hear that at all.  If I can just make him stop eating while laying in bed.  They fell due to his medication and staying sleepy he may have had something go down the wrong way.]]></description>
            <dc:creator>tjnana2</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Wed, 08 Sep 2010 17:29:13 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23023,23030#msg-23030</guid>
            <title>Re: LOOKING FOR INFORMATION ON SCARED TISSUE AND THE EFFECTS?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23023,23030#msg-23030</link>
            <description><![CDATA[ Try to find a Dental Hygiene Community College, they will do it for cheap. This is where I go to have my teeth cleaned and it cost me $20 compared to $200. Everything is clean ,is has to be its a teaching school.<br />
<br />
There is a surgery that a doctor can perform to where a person will not feel thier legs, but its barbaric.]]></description>
            <dc:creator>mark.barletta@paincare.org</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Wed, 08 Sep 2010 16:37:39 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23029#msg-23029</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23029#msg-23029</link>
            <description><![CDATA[ You said butt! LOL<br />
<br />
Michael]]></description>
            <dc:creator>mlang52</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Wed, 08 Sep 2010 15:39:13 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23023,23028#msg-23028</guid>
            <title>Re: LOOKING FOR INFORMATION ON SCARED TISSUE AND THE EFFECTS?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23023,23028#msg-23028</link>
            <description><![CDATA[ Mark,<br />
<br />
Wrong answer, today!  Scar tissue  comes from having surgery. Without a way to prevent it from re-forming, it will just come back, usually worse than the first time around!  And, most of the time, surgery will just result in no improvement in pain, with more pain occurring, as one continues to form, more, scar tissue, from an unwise surgical intervention..  Too bad doctors can't, or won't, treat the pain adequately. Guess they want to continue having a job!  Gotta watch out for the DEA, you know!<br />
<br />
 I spent $825 on my wife's root canal, today, I am broke. (took a little under an hour) That is more than three to four weeks pay, for her!  Too bad I can't find a reasonable job!  Saving is what allowed us to pay for it, though!  At least she is not going to have to suffer the severe nerve pain that last dentist left her with, after filling a cavity.  Now, she has to go back and get a permanent filling from the previous dentist. (only got temporary filling today) That adds $320 more to the bill!  Good thing I live with my parents!  Sad but true!<br />
<br />
I have to pay for it, though!  I would not want to ruin such a beautiful smile!  She is my life!]]></description>
            <dc:creator>mlang52</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Wed, 08 Sep 2010 15:36:39 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23023,23027#msg-23027</guid>
            <title>Re: LOOKING FOR INFORMATION ON SCARED TISSUE AND THE EFFECTS?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23023,23027#msg-23027</link>
            <description><![CDATA[ Nana,<br />
<br />
its hard to say when is enough pain enough after years of suffering. If it where me i would have the surgery to get rid of the scar tissue.<br />
If a doctor makes a mistake and leaves me crippled then at what point is that better than being in chronic pain every day. Life is hell living with chronic pain day after day ,year after year.<br />
I would rather live out the remainder of my life in a wheel chair than in constant chronic pain every day.<br />
So its hell if you do and hell if you don't.<br />
Nothing is worse than depending on pain pills every day on my life to get through to the next day.<br />
<br />
I wish all of you a day with less pain,<br />
<br />
Mark]]></description>
            <dc:creator>mark.barletta@paincare.org</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Wed, 08 Sep 2010 07:29:48 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23023,23026#msg-23026</guid>
            <title>Re: LOOKING FOR INFORMATION ON SCARED TISSUE AND THE EFFECTS?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23023,23026#msg-23026</link>
            <description><![CDATA[ MARK, NO! AS i EXPLAINED THEY WENT IN JOES BACK IN 1997 WITH HOPES TO RELIEVE SOME BUT THEY WER SO BUNBLES UP INTO A BALL THE SIZE OF A BASEBALL AND WILL CONTIUE TO GROW PULLING THE NERVES INTO THE MASS FOR FUTURE YEARS TO COME.  THEY WERE SO DISSAPOINTED AND TOLD US HE WOULD NEVER COME OFF THE MEDICATION AND NOTHING COULD BE DONE. THEY WENT THROUGH HIS STOMACH FIRST. (BIG MISTAKE) WENT THROUGH THE BACK THREE MORE TIMES.  THEY WER ONLY ABLE TO SEE WERE 2 OF THOSE NERVES WERE LEADING TOO BUT IT WAS NOT THE ONES CAUSING THE LEG PAIN.  I WAS TOLD THERE IS NOTHING THEY CAN DO FOR SUCH A MASS OF SCARED TISSUE AND THE FACT THE NERVES WERE SO BUNDLES TOGETHER.  IT WOULD BE TO DANGEROUS.  IT CAUSES THE NERVES TO GIVE HIM SO MUCHLEG PAIN AS THEY GET INTRAPED IN THIS MASS AND ONE SLIT CUT TO THE WRONG NERVE COULD LEAVING HIM CRIPPLED.  THERE ARE TIMES IF HE COULD STOP THE PAIN AND WOULD RATHER NOT WALK BECAUSE THAT IS PRETTY MUCH THE DEAL ANYWAYS WITH THE PAIN TO EVEN WALK TO THE BATHROOM.  EVEN HIS PINS AND SCREWS ARE FLOATING AROUND INSIDE HIS BODY AND ARE VISABLE IN HIS MRI.  IT APPEARS TO NE HUNDREDS!  THEY CAN'T REMOVE SCARED TISSUE IF THE NERVES ARE TRAPPED AS HIS ARE.]]></description>
            <dc:creator>tjnana2</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Wed, 08 Sep 2010 00:36:50 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23025#msg-23025</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23025#msg-23025</link>
            <description><![CDATA[ Hello All,<br />
<br />
This thing about how people think about some of us having to take pain meds. i had a Uncle who never let me rest, always said still hooked on those pain pills. I could not stand him but I never let him know how angry he made me. <br />
Then he had a heart attack and had to take pain meds for a while. Don't get me wrong i would not have wanted to see him die but i sure got on his ass about the pain pills. i told him you know that pain you feel in your chest write now, i live with that kind of pain in my body every day of my life.<br />
He did not know what to say and just walked off.<br />
<br />
For every reason a person can tell me why I dont need medication for pain , I can give them 3 reasons why i do.<br />
So dont let these people bother you all, just let it go in one ear and out the other. If you let it make you angry then they win.<br />
No one has to live in your shoes but you, so do what you have to to get by each day.<br />
I could care less what people think when it comes to the medication, they can kiss my lilly white butt.<br />
Their not the ones suffering every day of their lives.<br />
<br />
Mark]]></description>
            <dc:creator>mark.barletta@paincare.org</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Tue, 07 Sep 2010 08:44:59 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23023,23024#msg-23024</guid>
            <title>Re: LOOKING FOR INFORMATION ON SCARED TISSUE AND THE EFFECTS?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23023,23024#msg-23024</link>
            <description><![CDATA[ Nana,<br />
<br />
did the doctors remove the scare tissue. I have heard of this happening after surgery a lot. is the scare tissue intertwined in his spine, in and out the disc.<br />
In sure they can remove most if not all of the scare tissue, thing is they have to be careful if its in the disc itself.<br />
Scare tissue can form anywhere in your body after surgery.<br />
<br />
Mark]]></description>
            <dc:creator>mark.barletta@paincare.org</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Tue, 07 Sep 2010 08:25:40 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23023,23023#msg-23023</guid>
            <title>LOOKING FOR INFORMATION ON SCARED TISSUE AND THE EFFECTS?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23023,23023#msg-23023</link>
            <description><![CDATA[ Hello everyone,<br />
<br />
My husband is suffering from scared tissue from previous back surgeries.  This has left him with sever pain in his legs.  It appears the size of this formation was in size of a baseball .  In hopes of relieving some pain they were only able to find two.  They appeared to be mingles in and out like worms and could cause him to be paralyzed  Has anyone heard of an attempt to help with this problem or any studies on this?  I'm sure it has grown through the years.  Any advice would be appreciated.]]></description>
            <dc:creator>tjnana2</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Mon, 06 Sep 2010 22:21:46 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23022#msg-23022</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23022#msg-23022</link>
            <description><![CDATA[ Hi Julie,<br />
I hate your feeling so bad and have gone through so much.  I feel ya, I truley do.  I'm left with scared tissue from the back surgeries and arachnoiditis (inflammation of the spine).  I deal with a red ridden husband that is on so much pain medication, I lived with a fear of winding up like him.  I went on hydrocodone for 3 years until deep depression set in.  All I heard was your husband is on to much for us to prescribe anything and hearing that he was in the shape he was because of medication.  I was denied disability because of mistakes in my records to just because my husband was in bad shape did not entitled me to be disabled.  I could go on and on until I had to see a nuro-shrink.  Thankfully it was all good and she helped me to come to gripes that just because I had to take narcotics didn't mean I would be addicted and I couldn't deal with the pain on my own.  I was in fear that one of us had to carry on to get things done.  I finally got my disability and through the shrink I found a wonderful Dr. to treat my pain.  Yes, it's hard on me dealing with my husband's disability but with keeping my under control I am able to function allot better.  We have our good days and bad but it's not a life I would wish on my enemy.  NO MORE INJECTIONS! that left me with more scared tissue.<br />
<br />
The hardest thing for me to deal with now, is being judged by others who have no idea what it's like to live with pain on a daily basis.  If by grace you have a good day, it seems your judged and I can always feel by the questions I'm asked that they think I just want the pain meds.  As you said, Do people really think we enjoy the side effects, your whole lifestyle turned upside down and basically no life as apposed to a high on meds.  I never get a high.  I would get sick first and that's just another side effect.  Can't sit or stand for more than 20 min.  I can't walk far or drive long distance.  Can't sleep without changing positions all night. Either you have no appetite (ME) or gain weight from lack of exercise.  I tend to paste the floors and lay. <br />
<br />
I would love to read up on what all scared tissue can do to your nerves and pray for a cure for this.  I tell everyone that talks about having back surgery, &quot;You better think twice because you will left with scared tissue down the road that will grow like a cancer.  My husband's was the size of a baseball back 1997 and they could only relieve 2 because they were mingled in and out like worms and no way to see where they were going or coming from.  He could be paralyzed.  I often wonder as I watch his body get worse, how big it is now.<br />
<br />
That's wonderful this man was able to get off his meds.  Thankfully his pain was not to bad because I fought for 2-3 years trying not to turn to that from all the issues my husband has and I am very weak to taking anything.  If there are any side effects----I get them.  I was ready to end my life and not people could have dealt with the pain nor should have too.  As long as I take my medication and take it right, there is no fear of what's ahead because I've been there and either way you have to learn to live with the pain.  Thank God I don't have to do it alone.<br />
<br />
I wish you the best, Tami]]></description>
            <dc:creator>tjnana2</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Mon, 06 Sep 2010 19:57:49 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23020#msg-23020</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23020#msg-23020</link>
            <description><![CDATA[ Hi Janet,<br />
I so feel where you are coming from..over the last seven years I have gone through so many crazy experiences with pain doctors. I wonder if they start out that way or after time they just become that way. I just moved back to my home state and of course was fearfull of finding a new doctor knowing what I know, but my daughter is having my first grandchild! I had to come home..TERRIFIED.. knowing that I have to face a million questions and jump through hoops and try their &quot;special medications&quot; that always have horrific side effects and sure enough if that's not where I find myself again..no one knows what this is like..I tried to explain it to a friend who said her husband suffered from a disc issue or something and she said he weaned himself off the medication because he was afraid there might be a day when there was a teriffic catastophe and he wouldn't be able to get his medication so he just thought he would get off of them...I thought WHAT A LUXURY!..I have no choice...my body gave me no choice..I was strong and healthy and then I wasn't..who would choose to live from pill to pill, plus don't forget the constipation we deal with every day..that's wonderfull..who would want this??? and yet just like you say, they dole out their itty bitty peices of normalcy.....it's easy for me to get angry after all these years of pain but then what? I'm even more miserable..I'm just so glad I found you guys out there where ever you are..I have so much to share and I want to hear from you too..can't sit for too long though..will call it a night..<br />
JulieB]]></description>
            <dc:creator>JulieB</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Sun, 05 Sep 2010 23:17:34 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23019#msg-23019</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23019#msg-23019</link>
            <description><![CDATA[ Hi Julie,<br />
 I cant tell you how truly sick to death I am with the drs who THINK that they are  GOD. I want to line them all up &amp; just start shooting at them, first hit them in the toes &amp; just keep going. Then give those morons aspirin &amp; say here you go---this is what you get because in MY opinion as the dr I think that its all you need. Because YOU cant be hurting that bad.  They make me want to scream because to hear those idiots talk they know how much pain we are in. They have NO bloody idea how bad we hurt &amp; the truly sad thing is that they dont really want to.<br />
  If they truly gave a damn like they pretend that they do we would be gettin alot better pain meds than we are. I dnont know about ur dr but mine is beyond a bloody idiot. He hasnt got a clue as to the hell that I go thru on a daily basis. If he really &quot;cared&quot; then I wouldnt be sitting here crying &amp; screaming in pain most of the day. All he has to do is put forth a little bit of caring &amp; give me different meds.<br />
   Ive been trying for 18 months to get better meds, only to be told that I would be doing so much better if I would let him do a needless surgery on me, that I would &quot;jump&quot; up &amp; kiss him, I guess it doesnt matter to him that I cant even stand. To boot his not my type which I told him so, I would rather go out with Barney, if that tells you anything.<br />
   I really dont understand how drs who are supposed to know whether or not we are &quot;faking&quot; the pain--why cant they tell who is &amp; who isnt?? I would really love to get my hands on the ones that are faking it, so that I can beat the crap out of them, its those idiots why we cant get the meds that we need &amp; for one Im sick of it. They need the crap kicked out of them, they need to spend time with us to see the hell that we go thru cause they want the damn high.<br />
  Im sorry for what you are going thru. Its getting harder to write this cause the pain is flarin up along with the spasms so Ive got to go.<br />
    Sorry.<br />
     Janet]]></description>
            <dc:creator>tiredofpain07</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Sun, 05 Sep 2010 17:56:09 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23018#msg-23018</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23018#msg-23018</link>
            <description><![CDATA[ Hello Julie,<br />
<br />
I never recieved your Membership Application, sorry.<br />
I tell you what,email me and we will talk about finding you a doctor.<br />
<br />
Mark Barletta<br />
<a href="mailto:&#109;&#97;&#114;&#107;&#46;&#98;&#97;&#114;&#108;&#101;&#116;&#116;&#97;&#64;&#112;&#97;&#105;&#110;&#99;&#97;&#114;&#101;&#46;&#111;&#114;&#103;">&#109;&#97;&#114;&#107;&#46;&#98;&#97;&#114;&#108;&#101;&#116;&#116;&#97;&#64;&#112;&#97;&#105;&#110;&#99;&#97;&#114;&#101;&#46;&#111;&#114;&#103;</a>]]></description>
            <dc:creator>mark.barletta@paincare.org</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Sat, 04 Sep 2010 18:47:27 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23017#msg-23017</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23017#msg-23017</link>
            <description><![CDATA[ Janet,  <br />
  The leg pain is the worse pain Joe lives with.  He stays under a electric blanket most of the time.  I can't wait until he goes to the Dr. for the eye problems and I guess the swelling of his ankles and feet will be next. Sorry to hear your having such trouble with your legs?  Hope you have a better week and just look forward to your next outing.]]></description>
            <dc:creator>tjnana2</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Sat, 04 Sep 2010 17:54:24 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23016#msg-23016</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23016#msg-23016</link>
            <description><![CDATA[ Hi Mark,<br />
<br />
I was happy to hear from you and Janet! I did fill out my membership and also wrote my story and submitted it but not sure what happened if you did not recieve it. Let me know and I will take the steps to become an official memeber again. This site has been so helpfull and I have so many questions I want to ask everyone. There were so many times I sat waiting for an appt. in a dr.'s office looking at all the other patients and wanting to talk to them about their story and how the doctor was treating them. So this is really awsome..<br />
<br />
I was diagnosed with spinal stensos in 2003. Before that I was healthy and active. One day I got out of bed and fell on the floor and couldn't walk. I had never experienced such pain in my whole life. The years following the initial onset could be described as pure torture and disbelief in the medical proffesion. Why wouldn't they listen to me and see my tears, emergency room visits and screaming in pain? Only to be treated with a medication one step above aspirin. Today, after 9 spinal surgeries resulting in a flex rod w/ 3 screws, two cages, several lamectomeys and countless steroid injections I find myself once again facing a doctor who doesn't believe my daily struggle with pain. <br />
<br />
I can't sit here anymore but will return soon. I can't thank each and everyone of you enough for being there...<br />
<br />
JulieB]]></description>
            <dc:creator>JulieB</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Sat, 04 Sep 2010 15:30:08 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23015#msg-23015</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23015#msg-23015</link>
            <description><![CDATA[ Tjnana2,<br />
Sometimes its nice to have family come visit you, that is if they are understanding of your pain. I hope that yours is. Sure wish mine was. Im sorry to hear that Joe had a bad week, thats not good. Im happy to hear from you though, was beginging to worry that you were in so much pain that you werent able to post. I hope that Joe is getting better. Also hope to hear from you soon. Legs are hurting so bad right now that I cant even tell you.  Am going to go for now but hope to hear from ya'll soon.<br />
     Janet]]></description>
            <dc:creator>tiredofpain07</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Sat, 04 Sep 2010 00:40:05 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23014#msg-23014</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23014#msg-23014</link>
            <description><![CDATA[ I didn't post to the last topic because I was not familiar with the situation.  Had family in from Ohio this past week and Joe has had a pretty bad week on top of this.  I also enjoy reading everyone's Post bu can't always relate to the topic.]]></description>
            <dc:creator>tjnana2</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Fri, 03 Sep 2010 22:35:08 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23013#msg-23013</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23013#msg-23013</link>
            <description><![CDATA[ Hi Julie B,<br />
Glad that your here. Am looking forward to hearing your story. How long have you been in pain? Speaking for myself even a minute in pain is too long. I hope that your dr listens to you, I have one that doesnt hear a word that I say &amp; its been that way for 18 months. He has his mind set on me having surgery &amp; Im just not going to have it. I have a chance &amp; I do mean a chance that he might after 18 months either changing my meds or atleast increasing them. I hope that he changes them because Ive been on the same stuff for over a year &amp; a month now. <br />
  Anything would be better than what he has me on, they just dont work anymore. I keep saying my prayers for something---anything different, if you know what I mean. Well thats all I know for now---welcome &amp; hope to hear more from you soon.<br />
     Janet]]></description>
            <dc:creator>tiredofpain07</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Fri, 03 Sep 2010 20:13:21 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23012#msg-23012</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23012#msg-23012</link>
            <description><![CDATA[ <span style="font-size:large">Sorry I havent posted anything of late. No real reason. Just cant think of anything good to say. Today was doctor day for me. At least this doctor makes sure that I dont run out of medicines before my next visit. I do like that about the feller.  I over did it the last week or so doing stuff around the house so I ended up in more pain than normal. Its hard to find a position to sit or lay so that Im comfortable. Im hopefull that all this is temporary. I know better than to try and lift objects that weigh more than I do. But for some silly reason my mind stopped growing at the 20 year mark. But the body kept getting old fast. Im having trouble getting it thru my head that I cant do what I did years ago. No more racing dirt bikes or rock climbing. Nothing fun like that anymore. But Im so very happy that I found this group. I do wish more people would post daily. But I will try and do my part to keep it going. JulieB, I hope to hear your story real soon. It makes me feel better just knowing theres lots of other people out there that know what real pain is. Reading everyones stories helps.<br />
.................................................... Mike ........................................</span>]]></description>
            <dc:creator>wovocca</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Fri, 03 Sep 2010 17:36:42 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23011#msg-23011</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23011#msg-23011</link>
            <description><![CDATA[ Julie,<br />
<br />
I don't think I received your Membership, did you fill one out. anyhow I'm happy you found us and hope your not in to much pain.<br />
Did you write your story in the Patient letter Archives.<br />
What kind of problem do you have and why are you suffering from chronic pain.<br />
Please feel free to write about your experiences with chronic pain.<br />
<br />
Mark Barletta]]></description>
            <dc:creator>mark.barletta@paincare.org</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Fri, 03 Sep 2010 16:15:46 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23010#msg-23010</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23010#msg-23010</link>
            <description><![CDATA[ Hi,<br />
I'm here and new to this site. I was so excited to find fellow pain sufferers but haven't had anyone respond. I found comfort reading your posts and poured my heart out which was definately very helpful over the last week but it woud be nice to be feel a part of all of you. So I'll just say hello and hope I hope I hear from someone....<br />
JulieB]]></description>
            <dc:creator>JulieB</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Fri, 03 Sep 2010 14:19:05 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23009#msg-23009</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23009#msg-23009</link>
            <description><![CDATA[ Mark,<br />
 Believe me I cant either. I just have to make sure that I dont quit a-- hole before I know for sure whether or not they are going to actually take me as a patient. I cant leave until I know for sure that they are going to take me as a patient. I cant be without my pain meds for even a day.<br />
  I dont know how you have gone so long with this kind of pain, its all I can do to get thru a minute let alone 10 yrs. Im suppose to see the head honcho to increase my meds atleast thats what I was told at last office visit. So Im really hoping that after all this time &amp; with my right leg being so swollen that they are finally realizing that I really do hurt &amp; they will give me something better than what they have been.<br />
  Am glad that nothing is wrong as I was beginging to wonder why I havent heard from you or anyone else. I did fire my pharmacy, yesterday was the last straw. So Im going to be going to another one. Well thats about all I know for now, hurt really bad so Im going to end for now but hope to hear from you again soon. Thanks.<br />
   Janet]]></description>
            <dc:creator>tiredofpain07</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Thu, 02 Sep 2010 19:58:52 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23008#msg-23008</guid>
            <title>Re: where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23008#msg-23008</link>
            <description><![CDATA[ Janet,<br />
<br />
I think we are all checking the chat room to see if someone has made a post, so if we continue to talk we can get others to talk, so all join in. <br />
I cant wait till you  get to St. Mary's and get a new and better doctor. We all put in our time, i know I put in 10 years of suffering before i found relief.<br />
i think you have suffered long enough and deserve the pain relief you have coming to you. It seems we all pay a price in pain before we finally find relief.<br />
<br />
Over the years I have heard of so many stories of people suffering in chronic pain and have a real hard time finding pain relief.<br />
I cant stand it when I hear of abuse coming from a doctor that has the means of helping these people in pain.<br />
And they all have the GOD syndrome and all along their just useless to themselves and the pain patients they treat.<br />
I would like to inflict just half the pain we go through ever day on them to see the look on their face. And say YES that's called PAIN.<br />
<br />
Mark]]></description>
            <dc:creator>mark.barletta@paincare.org</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Thu, 02 Sep 2010 18:12:58 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23007,23007#msg-23007</guid>
            <title>where is everyone?</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23007,23007#msg-23007</link>
            <description><![CDATA[ Hello all,<br />
 I was just curious where everyone is? Its not like everyone to just disappear. Ive been in alot of pain &amp; I know everyone else is too, but its just not normal for no one to not comment on what is being posted. I just hope that everyone is ok.  Just wanted to check in to see how everyone is &amp; why theres not been an answer. Hope to hear from someone soon.  <br />
<br />
Janet]]></description>
            <dc:creator>tiredofpain07</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Thu, 02 Sep 2010 16:01:27 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23005,23006#msg-23006</guid>
            <title>Re: switching to suboxone from methadone</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23005,23006#msg-23006</link>
            <description><![CDATA[ Suboxone is expensive like outrages expensive compared to cheap methadone.<br />
I never tried suboxone but I hear it works pretty good. It should for the price you pay.<br />
<br />
Buprenorphine (Subutex) and buprenorphine and naloxone (Suboxone) are used to <br />
treat opioid dependence (addiction to opioid drugs, including heroin and <br />
narcotic painkillers). Buprenorphine is in a class of medications called opioid <br />
partial agonist-antagonists, and naloxone is in a class of medications .<br />
<br />
Mark Barletta]]></description>
            <dc:creator>mark.barletta@paincare.org</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Sat, 28 Aug 2010 11:30:09 -0600</pubDate>
        </item>
        <item>
            <guid>http://www.paincare.org/phorum5/read.php?1,23005,23005#msg-23005</guid>
            <title>switching to suboxone from methadone</title>
            <link>http://www.paincare.org/phorum5/read.php?1,23005,23005#msg-23005</link>
            <description><![CDATA[ I want to switch from methadone to suboxone and get it done without going through withdraws again is it possible]]></description>
            <dc:creator>DeeDee</dc:creator>
            <category>National Foundation for the Treatment of Pain</category>
            <pubDate>Fri, 27 Aug 2010 01:46:19 -0600</pubDate>
        </item>
    </channel>
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